For patients with rare conditions like hereditary angioedema (HAE), finding the right care can be life changing. Their experiences are often marked by uncertainty, delays, and misdiagnosis, with treatment journeys that feel anything but straightforward.
At Accredo Specialty Pharmacy, we understand the unique challenges that come with managing rare diseases like HAE, a genetic condition affecting about 6,000 people in the United States.
“HAE patients often share stories of long, frustrating paths to diagnosis,” said Jennifer Crosby, a staff pharmacist at Accredo Specialty Pharmacy. “That’s why our Rare Diseases Therapeutic Resource Center is so important; it brings together clinicians who specialize not only in HAE, but a wide range of rare conditions. Patients know they’re not alone. They have a team that understands their disease and is ready to support them every step of the way.”
Watch how Accredo pharmacists like Jennifer support patients with HAE:
Since the first FDA-approved therapy became available in the U.S. in 2008, treatment options have expanded, giving people with HAE greater control over their condition. With the right support and treatment, many people can manage their symptoms effectively – empowering them to work, go to school, and engage in everyday life with greater confidence.
Accredo’s tailored HAE treatment model
At Accredo Specialty Pharmacy, personalized care is central to our approach. Through the Immune and Complex Conditions Therapeutic Resource Center (TRC), patients have access to a dedicated team of clinicians who specialize in HAE and understand its complexities. Accredo’s specialized HAE team includes:
Pharmacists, who provide medication counseling and manage refills to ensure patients have guideline-recommended doses of both prophylactic and on-demand treatment. They regularly review patient regimens along with patient history to support disease control, recommending adjustments as needed to help patients prevent and treat HAE attacks.
Nurses, who conduct ongoing clinical monitoring and, when needed, administer therapies in patients’ homes through Accredo’s nationwide network of over 600 field nurses. Telephonic nurses are available 24/7 to provide continuous support.
Social workers, who engage patients and families in conversations about emotional well-being and daily challenges, connecting them with local, regional and national resources.
Patient access representatives, who help patients navigate insurance coverage, prior authorizations, and financial assistance programs to help reduce barriers to care.
Dietitians, who can help patients manage treatment side effects and provide nutrition guidance, especially for those with dietary triggers that may contribute to swelling episodes.
“Although hereditary angioedema is considered a rare disease, our team manages it daily,” said Amanda Rivett, senior product advisor for HAE at Accredo Specialty Pharmacy. “Our clinicians are highly trained in the nuances of HAE care. We use evidence-based protocols and tailor treatment strategies to meet each patient’s unique needs, helping improve outcomes throughout their therapeutic journey.”
Managing HAE involves more than delivering therapies. At Accredo, our specialized team provides clinical expertise, personalized interventions, and compassionate support to help patients manage the unpredictable nature of HAE.
Whether it’s a pharmacist reviewing treatment plans, a nurse administering therapy at home, or a social worker offering emotional support, every member of the Accredo team is committed to helping patients live well with HAE.
Need support managing HAE or another rare condition? Learn more about how Accredo’s Rare Disease Therapeutic Resource Center can help you or your patients navigate treatment with confidence. Visit accredo.com/raretherapies.
Evernorth’s Accredo Specialty Pharmacy raises the standard in specialty pharmacy, delivering care beyond the prescription and additive savings beyond the trend. Through our pharmacy model, plan sponsors can count on competitive specialty drug pricing and access to the specialty therapies your members need. We provide condition- and drug-focused expertise that prepares you for what’s ahead while driving the most value for you now. Our pharmacy engine propels savings to you and delivers well-being support for your members at no cost.
